Comments on: 23andMe 2011 State of the Database Address http://blog.23andme.com/news/23andme-2011-state-of-the-database-address/ Personal genetics for health, ancestry and research discoveries. Fri, 24 May 2013 20:34:08 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: james hadfield http://blog.23andme.com/news/23andme-2011-state-of-the-database-address/comment-page-1/#comment-53325 james hadfield Mon, 31 Oct 2011 11:32:20 +0000 http://spittoon.23andme.com/?p=9126#comment-53325 Hi,
I just recieved my results and posted on my log. I thought I would share this with you.
As the head of a genomics lab I would like to find out more about research thrugh 23andME. I’ll get in touch via the website.
James.

]]> By: Madelyn http://blog.23andme.com/news/23andme-2011-state-of-the-database-address/comment-page-1/#comment-39246 Madelyn Thu, 16 Jun 2011 14:20:28 +0000 http://spittoon.23andme.com/?p=9126#comment-39246 My husband and I are very interested in determining if individuals who have taken or are taking a statin, and possess one or 2 of identified SNPs in a gene your DNA profile assesses have an increased risk of neurodegenerative diseases. Given the data collected, the process should be straight forward and the information easily obtained. Is there a scientist with whom we could discuss this project?

]]> By: Shwu http://blog.23andme.com/news/23andme-2011-state-of-the-database-address/comment-page-1/#comment-39110 Shwu Wed, 15 Jun 2011 17:46:24 +0000 http://spittoon.23andme.com/?p=9126#comment-39110 Hi Dan,

We are definitely open to this idea and are considering the best options for broadening the impact of the data while ensuring participant privacy. We are also a very collaborative company and are currently working with a number of outside research groups to make discoveries. Individual privacy, however, is still the most important issue and whatever strategies we adopt will depend on the circumstances surrounding each specific research project.

]]> By: Dan B http://blog.23andme.com/news/23andme-2011-state-of-the-database-address/comment-page-1/#comment-39093 Dan B Wed, 15 Jun 2011 15:50:13 +0000 http://spittoon.23andme.com/?p=9126#comment-39093 Will the data that you have collected, both genetic and phenotypic, and the results of your analysis be distributed under an open source data access licence?

Naturally, sensitive data should be appropriately aggregated and anonymised to protect privacy, however, given that such protection strategies exist, I don’t think privacy is a major barrier to data release.

Given your “powerful tool for making discoveries that could help many others”, do you think there is an ethical argument to be made about keeping the underlying data secret and commercial?

In the future, as with so many emerging technologies, we face a growing divide between the ‘have’s and the ‘have-not’s. Will you work to alleviate the ‘genomic divide’ by releasing data?

http://FreeGenome.Org
http://PersonalGenome.Net

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