Thank You For Helping to Fight Rare Disease!

On Monday we kicked off a campaign for Rare Disease Day to raise awareness of research, especially into two rare diseases, myeloproliferative neoplasms (MPN) and sarcoma. We hoped to reach 500 participants in our MPN research initiative and 800 participants in our Sarcoma Community by today, and are happy to say that with your help we enrolled about triple the usual numbers compared to the average week. We reached our goal this week for MPN and are just a few participants shy of 800 for Sarcoma — definitely something to be excited about!

A big thank you to everyone who joined our research initiatives or helped spread the word. You really made a difference! We’re still enrolling participants so if you or someone you know has one of these diseases, we encourage you to get involved.

Over the next two weeks we’ll be posting more news and stories about both MPN and sarcoma, so stay tuned!






  • Maureen Markov

    re: Jist, did you mean “GIST”?
    (also- could we please be able to correct our spelling errors in the threads titles too?))

    noun
    1.
    the main or essential part of a matter: What was the gist of his speech?
    2.
    the ground of a legal action.
    Origin:
    1720–30; < Anglo-French ( cest action ) gist (this matter) lies, 3rd singular present indicative of Anglo-French, Old French gesir to lie ≪ Latin jacēre
    Can be confused:  gist, jest, just.
    Synonyms
    1. essence, point, substance, burden, kernel, import.

    Thanks!

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