Search Results for: fear

World Alzheimer’s Day

Editor’s note: Pending an FDA decision, 23andMe no longer offers new customers access to health reports referred to in this post. Customers who purchased prior to November 22, 2013 will still be able to see their health reports, but those who purchased after that time will not. Those customers will have ...

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Advocates for Women with Breast Cancer

In any big fight it helps to have someone in your corner and when it comes to breast cancer you want someone like Elyse Spatz Caplan and the people at Living Beyond Breast Cancer. Elyse, who herself was diagnosed and treated for breast cancer in 1991, oversees educational programming for Living Beyond ...

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An Active Participant in Breast Cancer Research and in Life

Editors note June 2013: Suzan "Suzie" Mickey lost her battle with cancer earlier this month. An advocate for better treatments for women with metastatic breast cancer, Suzie inspired many with her attitude. Our condolences go out to her family. Positive, helpful, and upbeat. These aren’t words you would ...

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23andMe Partnering with Patients

By Meghan Mullins Before joining 23andMe, I worked at a more traditional genetic research lab. Like virtually all research centers, we didn’t return genetic results to our research participants. I occasionally thought about what that meant, that I knew more about an anonymous stranger’s DNA than he or ...

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California Law Would Extend Genetic Non-Discrimination Protections

UPDATE (9/7/2011) California Governor Jerry Brown signed into law civil rights protections in the state to prevent discrimination against people based on their genetic information. A new California law, awaiting Gov. Jerry Brown’s signature, would apply California’s broad anti-discriminatory protections to ...

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DTC Genetic Tests and the Future of Regulation: Make Your Voices Heard

On March 8th, the FDA convened a two-day advisory panel meeting to discuss questions related to direct-to-consumer genetic tests. The questions focused on the benefits and risks of providing consumers with direct access to these tests, potential strategies for communication and education to mitigate any ...

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23andMe Presents at FDA Advisory Panel Meeting on Direct-to-Consumer Genetic Tests

Editor's note: This post has been altered from the original. The slides from the presentation have been removed. 23andMe, like many others, believes that individuals have a right to access their own genetic information and that personal genetics will pave the way for significant advances in healthcare. ...

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My $0.02 about The $1,000 Genome

Taken individually, the letters A, G, T, and C seem relatively harmless. However, when arranged three billion strong into a human genetic code, these letters have instilled fear of discrimination, disease risk, and a genetically engineered super race of humans (à la the 1997 film “GATTACA”).  Once only a ...

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Guidelines From Professional Human Genetics Societies and 23andMe Policies

by Uta Francke, M.D. The European Society of Human Genetics (ESHG) has issued a policy statement on direct-to-consumer (DTC) genetic testing for health-related purposes. Published in the Society's journal, the European Journal of Human Genetics, the statement addresses a multitude of issues and proposes ...

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23andMe….and me: Interview with Esther Dyson

Esther Dyson is a Director of 23andMe and an investor in numerous Internet, private aviation, space and health care ventures.  She has also shared her genetic data, medical records and other personal information with the research community and the general public as a research subject for the Personal Genome ...

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