Understanding GINA

The Genetic Information Nondiscrimination Act, or GINA, is U.S. federal legislation that protects Americans from discrimination (in health insurance and employment decisions) on the basis of genetic information. GINA was signed into law by President George W. Bush on May 21, 2008.The Genetic Alliance, the Genetics and Public Policy Center at the Johns Hopkins University, and the National Coalition for Health Professional Education in Genetics have created an online resource to help people better understand the protections GINA provides.   This information is available in English and Spanish at www.GINAhelp.org.
  • Mike Wilson

    It’s a good but simple read, well worth taking the time to check it out. Now there is little doubt here that this: http://www.technologyreview.com/blog/editors/25297/ applies here. Knowing what my genes tell me has been a moderate life changer and far more so than just knowing the interesting bits about my immediate families health issues. Glad to know that one’s health insurance is not affected by knowing even more from my DNA.

  • Nick

    I’d love to share my genetic data more publicly, but I’ve found it hard, since there’s so little data about the chips 23andme is using.

    Are you using a custom Illumina chip (some pages say yes, some just mention the HumanHap 550 series)?

    Is there a platform entry in GEO corresponding to your chip?

  • 23andMe analyzes customers’ DNA using an Illumina HumanHap550+ Genotyping BeadChip. 23andMe has also added a customized set of SNPs to the chip.

    You can download your raw, uninterpreted genome data (a file of about 5 MB) from the Browse Raw Data page (https://www.23andme.com/you/explorer/)

    If you are looking to share and compare with other 23andMe users, try out Genome Sharing: https://www.23andme.com/you/faqwin/accountsharing/